National Down Syndrome Day 3.21

Celebrate National Down Syndrome Day

Celebrating National Down Syndrome Day 3.21 has become such an important day for my husband and I.  A lot of the time when someone is dealt a difficult hand with lots of uncertainty, it is easy to live in the woe is me phase and believe me, we were there.  As we got to know our little Fiona, and fell more and more in love with her, she showed us the way.  She brightened our lives.  She blew us away.  Yes, her milestones come a little late and yes there are difficulties involved, be we are simply amazed by how much she is like every other child and I think it is important to remind others of this, hence National Down Syndrome Day.  I feel like as a society we can focus on or get distracted by the disability and forget that there is a person in there.   That person needs to feel accepted, loved, understood, has desires, things they love and need.  Since Fiona, my husband and I are much more sensitive to other people that have disabilities and try to go out of our way to help them feel accepted and loved.  (not that we didn’t do this before, but now much more so)

She is like all other kids

So, how is Fiona like all other kids?  Fiona is usually a very happy little girl, except when things don’t go her way (LOL).  She loves her pasta and bread.  She does love her veggies and fruits too, but not as much as her pasta.  She LoVes music and she loves to dance.  You can find her riding her bike or scooter, rollerskating or iceskating, drawing, making forts, playing kitchen and helping mommy cook.  She can tantrum if she doesn’t get her way, manipulate us so she gets what she wants and she remembers things too so she is sneaky.  She is definitely opinionated and strong willed but super funny and silly.

Right now Fiona is in a resource Kindergarten class where they focus on the goals we have set for her to learn this year.  She also gets OT, PT and Speech to help her in some of the areas where she needs extra help.   She recently started going to a regular Kindergarten class for calendar math and recess, which we are super excited about.  Her day is much like any other child her age except she works much harder and requires much more repetition.

We are blessed

We are so blessed to have her as a part of our family and she has taught us so much!   All of us have become more patient, caring, helpful, but the best is she has taught us to slow down.  Life is so fast now a days.  We love you Fiona you have brought so much joy to our lives and hope that people will become more loving and caring to those with disabilities and get to experience the joy that comes with it.

dresses: http://www.hm.com/us